Vanessa Boulanger


As the Executive Director of Strategic Partnerships at the Amyloidosis Research Consortium (ARC), Vanessa Boulanger works with a variety of stakeholders – including patients, community organizations, clinicians, companies, and regulators – to build collaborative relationships and innovative initiatives that meaningfully benefit the rare disease community.  

By supporting community-led partnerships, Vanessa aims to collectively shift engagement practices and support the translation of research and innovation into meaningful, accessible, equitable, and actionable outputs for patients. At ARC, one of the initiatives that Vanessa leads brings more than ten leading pharmaceutical and biotech companies together to design projects that advance science and address unmet needs for people living with amyloidosis.