Category: Updates

Northern Ireland Rare Diseases Action Plan

Northern Ireland Rare Diseases Action Plan

Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…
Musical Virtual RariTea (Free online event)

Musical Virtual RariTea (Free online event)

RariTea is the NIRDP campaign to encourage people to get together and host a RariTea party all over NI to find out more about rare conditions over our favourite cuppa. Sadly, in 2021 we cannot be physically together for a…