We're delighted to announce on NIRDP's 10th anniversary that an All-Party Group (APG) for Rare Disease has been established at the NI Assembly. This is all down to you, the NI Rare Disease Community who gave your support to the…
During lockdown, George and Saul took part in a project that encouraged young people who were shielding to film their lockdown experience. Through the group Headliners they produced a short film that was funded by the National Lottery Community Fund.…
Delighted that NIRDP will feature in the BBCNI Community Life Film supporting the MS Society NI Appeal along side the Mae Murray Foundation. Airing Sun 30 May 14.05 BBC1 Mon 31 May 23.30 BBC1 Tues 1 June 13.32 BBC2 Thanks…
After being diagnosed with granulomatosis with polyangiitis (GPA) in 2005, Julie Power was eager to connect with others with her disease for mutual support. After years of little luck, Julie founded Vasculitis Ireland Awareness (VIA). From her kitchen table to…
The Virtual Support Hub will be getting out and about across the country to say hello! Join us on: Wednesday 19th October 10:30am to 2:30pm Fermanagh Devenish Room, Fermanagh Lakeland Forum Thursday 20 October 10:30am to 2:30pm- Omagh Leisure Complex…
In May 2021, Headliners Foyle started working with the Northern Ireland Rare Disease Partnership (NIRDP) on a project that would turn out to be unique: one entirely recorded by a group of young people whom we would only see during…
As darkness falls over our capital's City Hall the invisible becomes visible... bringing colour to the world of rare disease. We are so pleased that Belfast City Council agreed to support our efforts with their #BelfastLightsAtNight display to raise awareness…
Social Café August Wednesday 4th at 11am via zoom, come along to our informal session - an opportunity to meet others, share, connect and support. Open to all our rare disease community. To join or for further information email: info@nirdp.org.uk…
