Virtual Living Well with events 2021

 Social Café

August Wednesday 4th  at 11am via zoom, come along to our informal session  – an opportunity to meet others, share, connect and support. Open to all our rare disease community.

To join or for further information email:

Patient Empowerment/Advocacy

This session will support self-advocacy, which is the ability to speak-up for yourself and the things that are important to you.

To sign up email:


Caring for your Mental Health

Listen to Professor O’Neill share tips and techniques on how to look after your mental health.