We’re delighted to announce on NIRDP’s 10th anniversary that an All-Party Group (APG) for Rare Disease has been established at the NI Assembly. This is all down to you, the NI Rare Disease Community who gave your support to the…
The Virtual Support Hub will be getting out and about across the country to say hello! Join us on: Wednesday 19th October 10:30am to 2:30pm Fermanagh Devenish Room, Fermanagh Lakeland Forum Thursday 20 October 10:30am to 2:30pm- Omagh Leisure Complex…
Health Minister Robin Swann has today launched the first Northern Ireland Rare Diseases Action Plan. The Action Plan sets out 14 high-level actions that will be taken forward over the next year, working with healthcare professionals and educators, researchers and…
Foyle NW Forum Rare Disease Support Group meet up: To join or attend a meet up email: info@nirdp.org.uk
RariTea is the NIRDP campaign to encourage people to get together and host a RariTea party all over NI to find out more about rare conditions over our favourite cuppa. Sadly, in 2021 we cannot be physically together for a…
Social Café August Wednesday 4th at 11am via zoom, come along to our informal session - an opportunity to meet others, share, connect and support. Open to all our rare disease community. To join or for further information email: info@nirdp.org.uk…
